Peptide Injections Anyone?

Binkyboo

Member
I had my first shot 2 1/2 weeks ago with Dr. Gomeringer and experienced some issues. Has anyone else had intense muscle cramping after the first injection, especially so with the legs and feet? Also, were there any of you that experienced a butterfly flush on their face the next day? I feel like I am experiencing continuous growing pains in my feet and legs. It's so uncomfortable! :eek:
 
Hello I am new here, but I have been coping with RA for 24 years, since I was 14!!! I am so interested in the peptide therapy, I've read a lot of the older post, Mikies especially and I'm so excited. Is it still helping you Mikie? Wasn't sure what u meant by remission? I can't believe this, is available in the US, I was planning to go to Mexico! Pinch me if I'm dreaming, is this too good to be true?:)
 

Mikie

Moderator
Hi, Everyone,

Binky, I'm so sorry about the side effects. The minute they tell you there are none, there is always one or two people who prove that wrong. I hope these side effects will go away and you will feel better.

Eva, I am soooo sorry; I meant to say "relapse" instead of remission. I've been in a really stressful situation and that isn't helping me. I believe the peptide injections continue to help me but, every now and then, I try to get a "booster" injection if I feel myself slipping backward. We are all different and the effectiveness of these injections differs from patient to patient.

Good luck to everyone who is trying this treatment.

Love, Mikie
 

RitaF

Member
Dear, dear Mikie, You keep keeping on for which I am very thankful. I know all too well that we "ain't like we used to be." I am back, maybe, for at least this question:

Does anyone have a list of Drs. who do peptide therapy in the U. S. and where they are located?

I had some experience w/ a clinic in Houston in 2013 but don't know their present status.
 

RitaF

Member
SIDE EFFECTS - I was once told that side effects are good in that they show that SOMETHING is happening. The worst response is no change. Feeling something new means something, maybe?
 
Hey wanted to let you all know I found another Dr who does the Amino Acid Injections, Dr Wichman at Advanced Rejuvination Institute in Georgia, they're # is 770-232-7883, website is advancedrejuvinationinstitute
I do not know specifics on their individual process or which amino they use, will let you all know more when I find out! I'm looking for a Dr as close to Asheville North Carolina to do the Amino acid injections, so please share any helpful info you all might have of Drs doing this!
 

Mikie

Moderator
Hi, Rita and Everyone,

Seems that these docs don't even have a list of the other docs doing the injections. A few may know one another from their travels to Europe to symposiums on the injections. It's really too bad but I understand that they feel they must keep a low profile to keep the govt. from interfering in their work. Also, they worry about protecting the formulae for the injections. I think it took a lot of research to come up with just the right sequences of peptides to make the sera.

I've been in a bit of a relapse and don't think just a booster will do it for me. I may have to bite the bullet and get a series of the injections for several months. The longer one has been ill, and the sicker one is, seems to determine just how well the injections work. A young person who just got sick may not even have to stay on the injections for a year. One injection seemed to clear up my doc's teenage daughter's allergies.

Good luck in finding docs. If you find one but he or she is not in the area you want, it might be worth a call to see whether that doc knows one in the right area. I still don't think there is a list but I know the ones doing these injections know one or two others who do. May take a bit of sleuthing. Good luck.

Love, Mikie
 
An update. I found a Dr in Asheville North Carolina who uses the Peptides! They asked me to keep their info off blogs and share sites, I just tried to include my email so someone could email me with a request for this info, but this site wont allow me. Maybe you can message me here if u want info? They said their Peptides are made in the US, that their connection to Oxford University has ended. He said its technically a nutrient, not a drug, so therefore, technically doesn't need to be approved by FDA, I wonder about this? I have to be off my Enbrel- immunosuppressant for 6 weeks, then Ill start shots of Peptides for Rheumatoid Arthritis . this Dr says there are 23 Drs in US using Peptides, but they stay under the radar.
Best of luck to you all.
 
Oh I also just found a trial for Peptides used for RA. There are many clinics or hospitals where it being done: Stanford clinic California, Arizona, Denver, Baltimore, Pennsylvania, Seattle Washington St, Mayo Clinic in Minnesota. . It was just posted on 9/25/15 so it may be open for patients. Heres the web page, Clinicaltrials.gov/ct2/show/NCT00000435 You just need to add https:// before it, this forum wont let me post a link yet. I couldn't find direct contact info on trial, maybe contact the specific clinic closest to you! My only reservation is you are choosen at random to either get the Peptide or a placebo.
Makes me wonder if there are studies of Peptides used for other disease too. I know there a clinical trial in Houston for Brain tumors. Did you all know Peptidesare used for Diabetes, Alzheimer's, Cancer, Epilepsy, ADHD, Dementia, Allergies and other Auto Immune disorders. its so exciting!
 

Mikie

Moderator
Hi, Eva,

Thanks so much for you valuable info. Yes, we are not allowed to post our personal info, including our e-addresses. We can privately message one another if we want to contact each other.

It was only a matter of time before others would be trying to develop their own peptide formulae. My worry is that big pharma will control them and charge an arm and a leg for the injections.

Love, Mikie
 

Mikie

Moderator
Just a quick update. For the last year, I've had one health issue after another that are not related to my immune/auto-immune issues. I've had to have lithotripsy on both sides for huge kidney stones, including insertion of temporary stents from my kidneys to my bladder. Never realized that both the stones and the stents can make one really sick. Then, after Thanksgiving, I got a head cold which lasted two months. I've been going downhill ever since. My Sjogren's Syndrome had gotten really bad and, when that happens, I know I've hit rock bottom.

So, this morning, I got a peptide injection. After only an hour and a half, my mouth has been watering off and on. That is a good sign. If this injections isn't enough to banish my symptoms, I'll get another one. Wish I could afford them on an ongoing basis because I believe I would feel better all the time. I now realize that I'll likely never be energetic and have glowing good health but I can survive when my symptoms are in remission. In addition to dry mouth, I've had FMS pain and increased pain and swelling from arthritis in my wrists. I haven't had a 'booster' injection since 2015.

I wish our members who have had the injections would post about their experiences. I wish everyone good luck with them.

Love, Mikie
 

RitaF

Member
I had my first shot 2 1/2 weeks ago with Dr. Gomeringer and experienced some issues. Has anyone else had intense muscle cramping after the first injection, especially so with the legs and feet? Also, were there any of you that experienced a butterfly flush on their face the next day? I feel like I am experiencing continuous growing pains in my feet and legs. It's so uncomfortable! :eek:
 

RitaF

Member
"RitaF Dear ones, I have a LOT to tell you. This is my first post back on this list since maybe 2015! Yes fms is part of the reason I couldn't get back here but LIFE happened too. To give you some context, here is my last post:

2015: Dear, dear Mikie, You keep keeping on for which I am very thankful. I know all too well that we "ain't like we used to be." I am back, maybe, for at least this question. Does anyone have a list of Drs. who do peptide therapy in the U. S. and where they are located?

I had some experience w/ a clinic in Houston in 2013 but don't know their present status.

2017 a partial update. in retrospect I was helped GREATLY by the clinic in Houston and Dr. Robert Battle, who was the head of it, as well as many wonderful staff members. The name of it was Comprehensive Health Clinic or something like that. I had 2 main problems with my experience, 1. I was soooooo ill that the treatments caused some die-off, so much so that I behaved badly as toxins had to be flushed out. In the chaos I lost contact with the clinic. Dr. Battle was, I believe 80 years old then, now 84? but knew oodles of therapies and had begun as an M. D. from the prestigious Rice University. His continuing education was phenomenal. I did the peptide treatments had 3 shots spaced, in 2013 and began feeling changes almost immediately, especially I felt HOPE.

2. Secondly, my husband of 52 years died suddenly in 2013 which = more chaos. it took until now for me to get back to this forum or any moderate functioning

3. Yes, these treatments aren't covered by insurance, costs are out of pocket. But I think they are soooo worth the effort that - Mikie, can you contact me privately, I might want to fly to your Dr. for further treatment!

God's speed to you all! RitaF
 
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