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Tips for Managing Daily Life

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lvjesus

Member
The chair is a good idea too. I have a small step stool that I use to sit on when loading the washer but then there is the getting up from that low. I use a chair sometimes in the kitchen when I am doing something that takes awhile, like peeling boiled eggs, cutting up stuff, etc. Glad you found something that helps! Thanks for the idea!
 
I am trying out different things but I have to say that the two things that I really feel work are:

1. Cutting my working hours and be really strict about it.
2. Acupuncture & Chinese herbs. I lie on the bed with acupuncture needles in me and feel the energy run through my body - and it makes me laugh! I feel better and happier for at least a day afterwards. Somehow I can feel the herbs working as well though I can't explain it - just feels like their strengthening me bit by bit.

Good luck!
 
I say learn to let the guilt go involving holidays, family obligations, etc.....don't let family guilt you into going to all events...we don't go to anyone;s home for holidays dinners, we eat here by ourselves(the 6 of us) hubby does the cooking.....it is so relaxing and peaceful.....

pick and choose your favorite holiday traditions and let the rest go.....i stopped sending xmas cards one year....another year, i stopped baking, ....this year, i only decorated the tree and put up stockings, no other house decorations.....hubby didn't have time to get the outside lights up and we just let it go.....

you can drive yourself crazy feeling guilty....i try to save all my energy(which is not very much) for doing small tasks for my kids and hubby here at home....my big job is laundry and keeping the house picked up and neat....

oh, and get a weekly housekeeper!!!if you can't afford it, try a teenager, they work for less when they are under 16....even if they just vacuum for you....or sweep...and change the bed sheets...
 
I thought I was the only one that felt this way. I don't know what to do, I have great friends but they don't have a clue as to the pain I'm in. I work full time because of the insurance but it is getting almost impossible to coninue. My husband is great but how can I worry him with the fact I don't think I can work much longer. What can I do?
I feel the same I just can't stop working we just brought a house and the guilt of him trying to pay it off would kill me I'm in so much pain every day I just sleep to I need to work cum home sleep cook sleep work
 

FenDog

Member
Pacing myself when I do my housekeeping tasks. I break each task down into small steps and then take one step at a time working toward completion. Jobs take longer, but at least I get them done. "Inch by inch anything's a cinch."
I love to read so I work for 15 minutes then read for 15. I goes a lot slower but it gets done! I love to garden so this is really helpful now that the weather is so hot.
 

denipink56

Member
I have a 3 br townhome -- much too much for me to handle on my own. I have a personal support worker come in 2 x a week. She tends to my personal needs, helps me with a sit down shower, puts medicine on my psoriasis that i can't reach and does light housekeeping. Twice a month she does my laundry. I call her my little earth angel because i don't know how i would manage without her.

Some days are my own -- to do what i choose with. I don't feel limited except i don't want to exercise because exercise hurts. Some days, though, i push thru it and walk a bit. I am walking about 3 x a week right now and i am very proud of myself.

I have changed my diet to vegetarian and i feel so much better and am losing weight. Preparation can be very taxing and so on some days i have to sit or lay down for a time then get up and start to prepare my meal. I then have to return to my rest position to build up more strength to prepare and then cook. It takes me longer this way but i get it done and my time is my own so no husband to fuss over, etc.

I do have a 24 yr old son living with me. He is a good help to me a good deal of the time. From time to time he can be a bit of a pain and does not do his chores, but, i just let stuff slide because stress is a real killer for me.

Bottom line for me is if i feel i need to be online all day and the only activity i have is to eat and sleep, that is exactly what i do and i don't feel guilty. I have learned to take care of myself and to put myself first.

Oh my gosh -- i just burnt a pot of lentils. I guess i should not be doing two things at the same time. lol.

Denise
 

zolup

Member
Yes, I agree with the importance of good sleep. My husband snores and since FM I have had trouble sleeping through it. Anyone else found an answer to this?
If he hasn't already, I recommend your husband be seen by a sleep specialist, particularly if he is has excessive daytime sleepiness. there may be things HE can do to help you get good sleep. I take Trazodone at bedtime; helps me get that restorative sleep that fibromyalgia steals from us. You might even consider sleeping in a different room.
 
What helped me the most was diet changes. A few years ago, after dealing with a couple of horrible years of Fibro where I could barely do anything, I reached a point where I was finally willing to do anything. I decided that I'd finally be willing to give diet changes a try. I'd fought it for years, despite several suggestions that it may help. I started 2012 with a juice fast. Nothing but fresh juice for 7 days. The next week I added in whole fruits and veggies (cooked and raw), then meat the next week, and finally the third week I tried adding back in various grains. I avoided gluten completely. My husband said he could tell a difference that first week despite the fact that I was cranky, I seemed to have more energy. After about two months I realized that I hadn't had a bad flare day since I changed my diet. I kept that up until I accidentally had gluten in May. The next day was the first time I felt really bad that year. It has happened a few times since then and I had a bad flare following a surgery at the end of that year. However, overall, I've been able to return to a pretty normal life. Right now I'm back in school and even took an 8am class this last month. I'm certainly glad that class is over and I can go back to getting more sleep, but I made it. I've continued juicing almost daily (although that went out the window this last month as well) and I've avoided wheat of all kinds, and have found that most grains seem to aggravate my IBS symptoms. I've also tried to make sure I'm getting regular exercise. I rest when I need to and try to remember to pace myself. But, overall I am living again and that's all any of us really want, I think.
 
I still work daily, too long days. But, if I can remember, I have found that a break, only has to be 20 minutes mid-day really, really helps.

Someone mentioned too much protein. I have been drinking a protein shake for breakfast after I read about it helping with hair loss. Could this be making the fibro worse?
wow you still work, good for you, kick butt, i know its hard, but i try to tell myself the more i do the better ill be
 
Walmart, smith's were hard for me until someone said "don't they have electric carts?" And everyone is much nicer too.I also have a cart to wheel things in the house. And I make the trips smaller, less to put away.
House keeping help is also a must.
wonderful, i used to work on those, let me know if you run into trouble
 

Momomo9

Member
If he hasn't already, I recommend your husband be seen by a sleep specialist, particularly if he is has excessive daytime sleepiness. there may be things HE can do to help you get good sleep. I take Trazodone at bedtime; helps me get that restorative sleep that fibromyalgia steals from us. You might even consider sleeping in a different room.
 
I also have a blank journal that i divide into sections....i clip photos from catalogs of things i want to get but i don't want to keep the whole catalog....and if you are an online shopper, you get lots and lots of catalogs!
 

pearls

Member
Pacing myself when I do my housekeeping tasks. I break each task down into small steps and then take one step at a time working toward completion. Jobs take longer, but at least I get them done. "Inch by inch anything's a cinch."
I agree! Pacing is one of the most helpful things I've learned in my nearly 20 years since my diagnosis. I could relate to the idea because my sons were long distance runners. They had to pace themselves, as well, though at a much faster rate, of course. Still, I was a do-what-you-have-to-do-to-get-it-done sort of person. It was not easy, but totally worth it. I learned to let a lot of things go.
 

pearls

Member
It has been almost 20 years since I was diagnosed with fibromyalgia. My worst symptom was daily, crushing chest pain. There were many more symptoms, as well, such as stomach issues, very sensitive skin, temperature regulation problems, etc. However, I want to assure you that, while you'll still have fibromyalgia, things can definitely improve!

My chest pain is gone. I had it for years, and I taught 4th grade with it for two and a half years of torture. Many of my other symptoms have cleared up, as well. What did it take?

For one thing, I retired.

But having done that, I took responsibility for my own health. After several years of taking 13 different prescription meds at a time, I found a way to get off of them one at a time. Your doctor should be able to help you with that. At first the idea of getting off meds terrified me. But meds work differently for different people. Some of us are highly sensitive to some or many of them. In any case, no doctor can assure you of all the possible interactions of multiple medications taken together. Some of our symptoms may, in fact, be caused by one or more of our meds.

Here's an example of how I got off of all but one of my meds.:

I was on a proton pump inhibitor for my gastric issues. It was so bad, I slept on a bed with one end raised quite a bit. I still had severe problems. So I asked my doctor how to get off of the drug. He showed me how to cut back, though he was dubious. At the same time, I started using a good probiotic. I can tell you I haven't had much in the way of gastric problems now for years. If I do feel some heartburn, I take a spoonful or two of sauerkraut juice. It has to be the kind of sauerkraut that you buy in a refrigerator case, the kind that has not been cooked. This juice is full of good microbes, and they help a lot.

Anyway, I worked on my meds one at a time over several years. The only one I'm still taking - because I can't seem to do without it - is Lyrica. That particular drug had made a huge difference for me all at once. However, I'm much better now, so I thought I could perhaps get off of it, as well. I've tried twice, but haven't been able to let it go.

The rest of taking charge of my own health has to do with my attitude. No longer am I a slave to whatever my doctors say. I read a lot on health and regard my wonderful doctors as consultants. They can make recommendations, or even be insistent, but I am in charge of my own health. Therefore, I decide if I will do what they say. Okay, this can be fraught with danger. But to my mind, it is my body. I've learned to listen to it. I've read many books on nutrition and health. I go on walks every day. I try to sleep (though that's difficult, to be sure). I cook most of my own meals. I take quality supplements (mostly Standard Process, which is only sold through health care professionals, and I buy mine through the mail.).

Doctors cannot live with me each day. I must! Therefore, it is up to me to take care of myself. You can improve your lot, as well. Go slow with it, but learn what you can. Do what you can.
 
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